Thursday, 7 July 2016 scheme has been binned

"The controversial patient information-sharing scheme has today been binned."

"The closure of the scheme was announced in a statement by minister for life sciences George Freeman MP. It follows a review by the National Data Guardian Fiona Caldicott which recommended better safeguards for the sharing of patient data."

"Freeman said: `In light of Dame Fiona’s recommendations, NHS England has taken the decision to close the programme`."

"However, the government and the health and care system remain absolutely committed to realising the benefits of sharing information, as an essential part of improving outcomes for patients."

"Therefore this work will now be taken forward by the National Information Board, in close collaboration with the primary care community, in order to retain public confidence and to drive better care for patients."

"The programme has faced ongoing controversy and delays since it was first announced three years ago."

"The main concern around the programme has been the sharing of sensitive medical information with commercial entities without explicit consent."

"So far one million people have opted out of the scheme. However, the report by Caldicott today recommended that patients must be allowed to opt out of their personal data being used for purposes beyond their direct care."

"It said not enough had been done to gain patients' confidence in the scheme."

"Earlier this year, a leaked document revealed that the Royal Free NHS trust had controversially signed a deal with Google's DeepMind to give the outfit access to 1.6 million patient records."
"Responding to the announcement, Phil Booth, coordinator of medConfidential, warned that while the `toxic brand` may have ended, the government policy `continues to be the widest sharing of every patient's most private data`."

"He said: `The programme did exist, and has a toxic legacy leaking across the NHS`."


"Google DeepMind is a British artificial intelligence company founded in September 2010 as DeepMind Technologies. It was renamed when it was acquired by Google in 2014..."

Any idea why children`s data is up for sale ?


  1. Haven't been able to keep up with an of this but did notice this the other day:

    Public sector data sharing to transform service delivery, says government

  2. Well spotted.

    So the government lets go of the initiative because they`ve got the Digital Economy Bill coming in; just when people are distracted by Chilcot and all the other changes going on:


    "The government is aiming to transform service delivery across the public sector by bringing in new legislation to allow for data sharing as part of the Digital Economy Bill."

    "The government said by changing the way it used data to improve public services, it could help transform interactions with citizens and help reinforce a “world class” digital infrastructure. It said current practice around data management meant it was missing valuable opportunities to help people and wasting taxpayers’ money."

    “We want the UK to be a place where technology ceaselessly transforms the economy, society and government,” said digital economy minister Ed Vaizey."

    “The UK has always been at the forefront of technological change, and the measures in the Digital Economy Bill provide the necessary framework to make sure we remain world leaders.”

    "The changes to be introduced cover a number of aspects of data management. Firstly, the government plans to allow public authorities to share personal data with other public authorities in carefully defined contexts to improve individual welfare."

  3. We'll tell the stupid, useless eaters that we will stop snooping on them but of course we still are.